Monday, March 14, 2011

Thank You!


With all sincerity, we would just like to say thank you again so much for all of you (and those you recruited) that joined with us in prayer, and supported us in the hospital and afterwards, a year ago today as our son began a 12-day journey with 2 collapsed lungs full of fluid that didn't want to stay inflated and on full oxygen support to a full recovery with what looks like zero residual problems.

We were overwhelmed with the support and prayers then and will forever be thankful.

Thank you.

Friday, April 9, 2010

Origin of Connor...

Origin of the name Connor:
Anglicized form of the Irish Gaelic Conchobhar, a compound name composed of the ele-ments conn (wisdom, counsel, strength) or con (hound, dog) and cobhair (aid). “High, will, desire” and “hound lover” are other definitions attributed to the name. Var: Conner.

Origin of the name Shane:
An Anglicized form of the Irish Seaghán, a variant form of Eóin which is a Gaelic cognate of John (God is gracious).

In other news - we are long overdue on a 'real' update - hopefully this weekend!
He's doing great so far, though!

Thursday, March 25, 2010

Tough to work today...

Getting very excited about "rooming in" with Connor tonight to take care of him at the hospital, then taking our son home in the morning! I'm in between patients, so, perhaps if Heidi has a chance, or later on tonight, we'll write a little bit more about the plans for the next 24 hrs....

Wednesday, March 24, 2010

Friday it is!!

So, Connor is coming home on Friday morning! His NG tube is out. He passed his hearing screen. He'll be getting his hospital pictures take sometime today in his cute little outfit! He did the best he's done with nursing this morning, so I'm hopeful that will continue to improve.

We are absolutely, positively thrilled and thankful to God and all of you for your prayers and support! 2 more days!!!

Tuesday, March 23, 2010

The countdown is on!

We don't know the exact number of days he'll be still be in the hospital, but we're getting much closer! He is up to 6 out of 8 feedings a day and tomorrow should be up to 8/8 full feedings a day (meaning bottle/breast feeding, rather than breast mild through the nasogastric tube). That will mean they should be able to take out the nasogastric tube tomorrow! Then the only wires remaining will be the ones monitoring his blood pressure, respiratory rate and heart rate. Dr. Santiago said this am that once is on full feeds, he will likely be here another 2 days. They also have removed the chest tubes dressings as those appear to be healing nicely...they just have some steri-strips on them now.

In preparation for going home, he should be getting his hospital photos taken tomorrow, had his circumcision done today (which he apparently tolerated pretty well) and had his first Hepatitis B vaccination. The lactation consultant also gave me a schedule of how to do his feeds once we get home!

He has been pretty sleepy since getting his circumcision. His bottle feedings are going well, apart from spitting up most of his 8am feeding all over me (me=Heidi). Nursing is starting to slowly get better and I think would improve if he could stay awake during those times we try. He is a bit "tongue-tied" (he can't fully extend his tongue due to the little piece of connecting tissue on the underside of his tongue extending farther out toward the tip of his tongue than it should), which makes this a bit more difficult... although it could be worse. Once he is discharged, his pediatrician will evaluate to see if he need to get the frenulum cut or not. This is something that could potentially affect his speech later on as well depending on how bad it is. Shane and my mom both had to get this done when they were young.

My parents flew back to Wisconsin this afternoon, so I've been having some alone time with Connor and the NICU waiting room. They've already booked a return trip for Easter weekend, so they'll be able to see him when he's at home shortly. I'm about to take a little nap and then Shane should be here shortly after he's done with work for the day.

We continue to be in awe of the amazing recovery God has allowed for little Connor and can't wait to take him home soon. It's looking like he'll be home before his 2 week birthday! My heart does go out to the parents of the little ones around us who have had some setbacks in the past couple of days. We'll be praying for their improvement as well. Connor is huge compared to most of the babies here as most of them are preemies who weigh anywhere from 1 pound 10 oz. on up.

Please also say a prayer from my Grandpa Makovec who had a heart attack yesterday afternoon. He is stable in the hospital and last I heard should be able to go home in the next couple of days...

Monday, March 22, 2010

This is a little more like it... :)







A couple of other random bits:

-the green pile in the corner is the first onesie he had on---which he decided to thoroughly soak through while the nurse was assessing him last night.
-he sucks on the pacifier about as loud as Maggie from the Simpsons...

Another brief update...

Heidi again...

Another good day for the little man. They took off his pulse ox monitor because he was doing so well and doesn't need it anymore, so there is 1 less wire attached to him. They're planning on taking out the IV line in his umbilical cord around 3 o'clock today. Then, other than the EKG leads, the only other thing remaining will be his nasogastric tubes, which is being used for 4 out of his 8 daily feedings. They are increasing his bottle feeds to 4 times daily today, so once we get the remaining 4, he can come home!! His nurse said that sometimes there is a little setback once they get to 5 bottle feeds/day, but because he is a term baby, he may just cruise right through.

I'll be working with the lactation consultant at 2pm today to try to get that going better, too. They said that no matter how well that goes, he'll need to be bottle fed initially as well to make sure he is getting enough food. They continue to say that babies as sick as he was take some time to get the hang of breast feeding, so I'll trust them on that. I'm praying that we'll get the hang of it soon.

It's another good sign that the nurse started asking questions about things that we'll need to get in order before discharge. His nurse told me to make sure we have plenty of bed linens as he soaks through them several times daily :) Dr. Reddy is here again today (she was the one who was here the night he was transferred) and she said several times how pleased she is at how he is doing. She called him a troublemaker, but said he was a cute one and that he looks like his daddy.

Shane went back to work today so that once Connor comes home, he can hopefully take another few days off to be there to help out when he gets home. He was able to come by the hospital during lunch and held Connor briefly to prevent going through withdrawal.

That's about all for now. Your continued prayers are appreciated! Thanks again for all the support...