Well, it was more of a major problem, but not really a setback.
Maybe 5 minutes after typing the last update and turning out the lights to get 1 more hour of sleep before going back to check on Connor, we heard loud pounding at our door. It was the unit clerk telling us the needed us back in the back STAT. We scrambled to find the lights and our shoes, but she told Heidi just to forget the shoes and run back.
When we got to Connor, Dr. Reddy was at the bedside with about 6 other staff. She was quite concerned about him. His oxygen sats (saturation) had remained in the 80s despite 100% oxygen. She thought perhaps it was a reoccurrence of the left pneumothorax, but wasn't sure. If that wasn't the problem, the only option Connor had left was the nitric oxide, so it was being set up.
They got a STAT bedside X-ray and took me and Heidi back to see it. These digital X-rays literally take no more than 2 minutes from the actual x-ray to viewing. We took 1 look at the lateral/side shot and noticed the pneumothorax so we instantly went back to the bedside to "needle him" - place a needle in his chest to siphon off the free-air around his lungs. She didn't even wait for the front view.
They siphoned off 70 mL of air. However, his oxygen saturation did not respond immediately, so she decided to start nitric oxide. About the time the nitric oxide got started, his oxyggen saturation finally started to reach the 90s and eventually 100%.
Dr. Reddy got a follow-up chest x-ray, but unfortunately since he was angled the picture wasn't that great. At this time we saw the frontal view from the original x-ray and realized he indeed had a tension pneumothorax - basically a recurrence of the problem he initially had in Allen that prompted the transfer wherein the heart gets shifted from the left side of the chest to the right side due to all the pressure caused by the free air outside of the lungs.
Dr. Reddy felt she had the chest tube in the right place, so she sutured it in place and got a 3rd chest x-ray which gave a great look. His heart is now back on the left side and there is no further pneumothorax.
His oxygen level is back to 100% on 100% supplemented oxygen and she is turning off the nitric oxide.
His blood pressure dropped in the process of all of this, but a little extra dopamine raised it back to appropriate levels (MAP 45).
One nice thing of note: his chest x-ray looks much less hazy than before, so it appears a decent amount of fluid is gone from his lungs. Also, a lot of the air from the pneumomediastinum (the free air between his lungs that wasn't supposed to be there and which prompted the change of ventilators) is actually resolved.
So, Dr. Reddy is happy again with his status. She said she got a lot of sleep during the day yesterday as Connor had "kicked her around like a football" the night before as she tried to get him stabilized.
We think Dr. Reddy and the nurses and ancillary staff here at Plano Presby are top notch. We have full confidence in them.
Dr. Reddy is a little worried about his kidneys. She's trying to figure out why he's having so many pneumothoraces (sp?). He has had good urine output and his BUN/Creatinine (kidney function numbers) are great, so it's less likely. I personally think it was just because the placement of the initial chest tube wasn't the greatest.
The final chest x-ray confirmed tonight the chest tube is in the right place and should function as well as the one on the right has.
So, when we left his heart rate was in the 160s (it had been up to the 200s at one point), blood pressure was good (MAP 45-50), and oxygen saturation 100%. They were getting a blood gas to see how his oxygenation numbers are.
Dr. Reddy told us to go ahead and get some sleep, although I don't know how much we'll sleep. Heidi has to pump again in about an hour.
Right before we left to go back to our room (Heidi still in her socks), Dr. Reddy said Connor was going to "keep us on our toes." :) Heidi said, "We'll take it."
So, our son likes a bit of the morning drama. Hopefully he'll give us and Dr. Reddy a break tomorrow night...
Wednesday, March 17, 2010
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Dear Heidi, Shane and Connor,
ReplyDeleteWe are praying our hardest for your little family. We are so sorry for you that you have to go through this, but keep up your wonderfully strong faith in God. If you can't hold him in your arms yet, you can still swaddle him in prayers and love. May God continue to grant you grace and the power of healing in your time of need.
Heidi - I'm thinking of you constantly and I love you so much. Good luck!
Meggan
Heidi and Shane,
ReplyDeleteYou are in are prayers here in Indiana and Minnesota.
-Tommy & Becky
Wow - the blog shares so much of your tumultuous ride of the last three days. I teared up reading the various scares, but feel the honest strength and love moving through all of it. I really appreciate your openness to share all of it with us!
ReplyDeleteI can only add my heartfelt prayers for Connor, for you both, and for all of our larger group of family and friends. May God continue to work with and through Connor and his caregivers, and with you.
You are fortunate and loved. May you feel our strong support and prayers!!
- Steve Makovec
wow. I hope you guys can get a few winks today!
ReplyDeleteJeff and I are following things. Maybe, just maybe now, it is going in the right direction. Sounds like there are improvements despite the PTX this AM. Soon, he'll be home with you and hopefully all of this will be a stressful blip behind you, with a long life together ahead. If there is one thing you know in medicine, it is that kids are resilient little bodies--with great medical care, and great caring parents, he has the best chances! Keep hanging in there! I am praying for you both!
ReplyDeleteShane, Heidi & sweet little Connor,
ReplyDeletePlease know that many prayers and much love is being sent your way for you and especially Connor (and Gpa's & Gma's too)from northeast Wisconsin. It sounds like your little Connor is quite a fighter and that your faith is keeping you strong and brave amdist such a very challenging time. Please know we are thinking about you and praying for his healing. May God continue to bless you with His grace, peace, and hope.
~ Mike, Dawn, Jake & Kyle Schalow
So it appears that Connor already has some of his Dad's personality (he likes to keep people on their toes). We're looking forward to seeing everything else God has given to Connor: his attributes, gifts and personality, as he grows in body and spirit! Our family, our friends and our whole church are praying for all three of you. God is good, He will carry you and bless you through all of this! These problems are serious, but temporary. God's grace is even bigger and it's eternal. We love you three. You are in our hearts, our thoughts and our prayers.
ReplyDeleteI wanted to share these with you, they are from two of my friends that responded to me requesting prayer for you guys! I am still continuously praying for all 3 of you as well!:
ReplyDeleteFrom my friends William and Charity Mendez who are at Dell Childrens right now with their 12 year old daughter who just had a spinal surgery...
"Awe babies are such a gift! I pray for complete healing in his entire body! Grow him and build him to be a wonderful warrior of God! And to the parents let there be peace overflowing their bodies and their minds. Peace and strength for baby, parents and family :) its not easy having a sick baby or one in pain (I know first hand right now) but we must give them and all of the circumstances surrounding them to God."
From my Very Best Friend Bridget De Hoyos
"Who are the parent of Connor? Like how do you know them? I just got done reading it and it is very much so heart wrenching!!! Please let them know they are in my thoughts and prayers and I hope for the best for Baby Connor he looks adorable in that pic!"
From Linda Douglas.
ReplyDeleteMy goodness, what a lot your little bundle of joy is putting you both through! I also felt tearful reading the blogs; but it is apparent you are in very good hands with your specialist and hospital. My mom has a Catholic Ladies prayer chain that seems to have an inside track!: they literally feel their spiritual gift is prayer, I will write them to add you Shane and Heidi and little Connor to their prayers; and to my own and those of all your loving friends for a rapid and full recovery. May the Lord hold you and uplift you both in these hard hours. Linda